The Good, the Bad, and the Ugly.

Well, I’m a day late from my promised exciting news…  and all I have to say about that is, “Never trust a girl on drugs with a 105 degree fever.”

Here’s what’s happened so far:

  • I Relapsed
  • I went through Chemo
  • Day 14 bone marrow biopsy – Came out clean.
  • Giant 8″ blood clot formed around my pic line
  • Started getting tons of platelet infusions so that they could give me blood thinners to break up the clot.
  • Started getting tons of blood transfusions
  • THE WAR OF THE FEVERS
    • 6 straight days of fevers of at least 105 degrees

Now that I’m feeling back to normal, I can explain a little more about what’s going on.

Relapse sucks. There really aren’t a whole lot of options, so they start you out with “Salvage Chemo” At this point, it is critical that they get me into remission. I will get a bone marrow biopsy this week to see if that is the case. I need to get into remission to survive. If I get into remission, I go to a 2nd Bone Marrow Transplant with an unrelated donor.

If I don’t get into remission. There’s really nothing left but clinical studies. I’ll have about 6 months if I can’t get a clinical study that can put me into remission.

Either way, I have pretty much the most amazing boyfriend ever. We are prepared for all scenerios. He went to part time hours at work and researched all of the possible trials throughout all of the best hospitals in the country. If I’m in remission, we will be getting second opinions from some of the best doctors in the country.

So, we’re borrowing a jet.

First Stop:  Fred Hutchinson – Seattle

Second Stop: HOPE at UCLA  – Los Angeles

Third Stop – University of Pennsyvania – Philadelphia

I’ll get biopsy results next week, but either way, I’m not going to say good-bye just yet.

 

 

 

 

 

 

 

 

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One thought on “The Good, the Bad, and the Ugly.

  1. Hi snow, I just want to let you know that the Car-t therapy trial is amazing my hubby who failed all his chemotherapies couldn’t even make it to his transplant, we went to Seattle and it worked! He’s currently on the 3rd floor day +25 of his transplant. If you want to talk or pick my brain just ask Katie for my number. Lots of love and keep fighting you got this 🙂

    Like

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